Improving Services for Disabled Children & Young People

There is nothing that cannot be done if we raise our voice as one!
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Who are we?

 

The Wiltshire Parent Carer Council is run and managed BY parents and carers FOR parents and carers, who have a child or young person with some type of disability or special needs. 

 

Our children range in age from 0-25yrs and the kinds of disability they have vary from being  physical, learning, communication, behavioural, sensory or rare disorders, as well as health conditions which mean they have additional and sometimes very complex care needs.  
 
Why did we form a group?
 
In a nutshell, we want  our  children to have a better life!
 
We want them to have the same opportunities as other children and young people.
 
We want appropriate and timely support for our children
and our families.
 
We want to see an improvement in quality and choice of services provided by the local authorities in Wiltshire.
 
We want access to 'parent-friendly' information - communicated to us in a way we understand - verbal and written!  
 
'Eligibility criteria', (yes, that old chestnut) needs to be clear so that families understand if they are entitled to a service, or not.
 
We generally want more information, more choice, greater transparency and consistency of services across Wiltshire that meet the needs of our disabled children, our young people and our families.  

 

How we started!
 
We realised we had a real opportunity to make a difference when Government made disabled children a national priority in 2007 and introduced a programme called
 
 

The programme was developed following the results of a national review of services and support for disabled children and young people, which highlighted that, in many areas, services and support were not always meeting their needs or those of their families. 

 

As a result Government agreed to provide extra money to each local authority to help them develop better services, with the expectation that they work with parents and carers to transform local provision.